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Contact : +91 9315510518

Article Abstract

International Journal of Advance Research in Multidisciplinary, 2024;2(1):252-257

Socioeconomic challenges and support mechanisms for families of individuals with autism spectrum disorder In India

Author : Premlata Sharma and Pritee Dixit

Abstract

Autism Spectrum Disorder (ASD) appears with comparable frequency worldwide, spanning different social, ethnic, and geographical settings. Nevertheless, the presence and quality of resources and services dedicated to ASD are noticeably limited in developing countries, including India. Compounding this issue, the encounters of individuals with ASD are profoundly influenced by sociocultural elements. Interestingly, a significant proportion of research on ASD has predominantly originated in economically advanced countries.

The objective of this study was to delve into the ways in which social, cultural, political, and economic factors impact the experiences of individuals with ASD and their families within the context of India. To attain this objective, interviews were held with seventeen parents of children with ASD, accompanied by structured observations conducted within several ASD-related organizations located in Jaipur and New Delhi. The findings of this study underscored the substantial role played by socioeconomic and cultural factors in shaping the experiences related to ASD.

Within India, there exists a scarcity of suitable ASD-related resources, and they remain even less accessible to those who are most in need. Furthermore, stigma and a lack of awareness act as additional barriers, impeding the quality and availability of necessary treatments and interventions. Despite the endeavours of numerous non-governmental organizations to tackle these challenges, their initiatives are constrained by inadequate support and funding from the government.

Keywords

Autism, socio-cultural factors, spectrum